PSC
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Slower travel; quiet days
Since picking up the HAVN in February 2026 we’ve moved pretty quickly. We’ve always needed to get somewhere by a certain date and we’ve covered a lot of ground. On one hand, that’s exciting and I appreciate all the people with whom we’ve reconnected as well as the variety of places we’ve camped. On the…
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Good news from Mayo Clinic
I had tests done on March 9th while we were in Phoenix and I had my hepatology follow-up yesterday. Figured I’d better wait to share the news until I talked to my doctor to be sure I’m interpreting things correctly. I started on Ursodiol in November 2025. My own self-pay bloodwork in January 2026 showed…
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Ready for Adventure!
We’re making final preparations to pick up the new RV on February 13th. It’s exciting to finally reach this stage after what feels like a very long time sitting still and waiting while all the medical appointments run their course. …more details below! Medical Update Liver Crohn’s Disease So we’re very close to the finish…
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Holiday 2025 Update & Microbiome Analysis
Good news abounds I’ve been a little slow with this post, but things have been going extremely well. So, yay us! Holiday Travels & Family Time I enjoyed a trip to Rockford over Thanksgiving, spending 6 days with my parents. It was peaceful time well spent. They’re warm, smart, and supportive. My sister and her…
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Is this just a medical blog now?
I sure hope not. It’s always been a “What’s going on in retirement” blog. And unfortunately, what’s been going on just now is very medically-focused. But we still hope to hit the road in early 2026. Notice I’ve stopped writing that we’ll start traveling in January. It seems less likely to hit that goal now…
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Also…Crohn’s Disease
Edit, December 18, 2025: Although all signs point to mild Crohn’s Disease, there hasn’t been enough data for a formal diagnosis, which I had not realized until recently. My actual diagnosis at this point is “Ileitis” or inflammation of the terminal ileum. IBD is found among 70-80% of PSC patients, but usually it is Ulcerative…