Health
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Annual Mayo Clinic trip
Every year, barring developments that make me return sooner, I will have a series of annual surveillance tests at Mayo Clinic in Jacksonville. Last week was the first time since diagnosis that I’ve been on this yearly schedule and I was able to group all of the appointments together in one week. I flew down,…
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When the symptom list doesn’t tell the story
Over the past months, many people who care about me have wanted to understand how PSC could impact my health and quality of life moving forward. I always struggle to provide an answer I feel is adequate. I say “fatigue” and “itching” but those words never quite capture the patient stories I have seen over…
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Slower travel; quiet days
Since picking up the HAVN in February 2026 we’ve moved pretty quickly. We’ve always needed to get somewhere by a certain date and we’ve covered a lot of ground. On one hand, that’s exciting and I appreciate all the people with whom we’ve reconnected as well as the variety of places we’ve camped. On the…
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Good news from Mayo Clinic
I had tests done on March 9th while we were in Phoenix and I had my hepatology follow-up yesterday. Figured I’d better wait to share the news until I talked to my doctor to be sure I’m interpreting things correctly. I started on Ursodiol in November 2025. My own self-pay bloodwork in January 2026 showed…
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Holiday 2025 Update & Microbiome Analysis
Good news abounds I’ve been a little slow with this post, but things have been going extremely well. So, yay us! Holiday Travels & Family Time I enjoyed a trip to Rockford over Thanksgiving, spending 6 days with my parents. It was peaceful time well spent. They’re warm, smart, and supportive. My sister and her…
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Is this just a medical blog now?
I sure hope not. It’s always been a “What’s going on in retirement” blog. And unfortunately, what’s been going on just now is very medically-focused. But we still hope to hit the road in early 2026. Notice I’ve stopped writing that we’ll start traveling in January. It seems less likely to hit that goal now…