PSC
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Ready for Adventure!
We’re making final preparations to pick up the new RV on February 13th. It’s exciting to finally reach this stage after what feels like a very long time sitting still and waiting while all the medical appointments run their course. …more details below! Medical Update Liver Crohn’s Disease So we’re very close to the finish
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Holiday 2025 Update & Microbiome Analysis
Good news abounds I’ve been a little slow with this post, but things have been going extremely well. So, yay us! Holiday Travels & Family Time I enjoyed a trip to Rockford over Thanksgiving, spending 6 days with my parents. It was peaceful time well spent. They’re warm, smart, and supportive. My sister and her
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Is this just a medical blog now?
I sure hope not. It’s always been a “What’s going on in retirement” blog. And unfortunately, what’s been going on just now is very medically-focused. But we still hope to hit the road in early 2026. Notice I’ve stopped writing that we’ll start traveling in January. It seems less likely to hit that goal now
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Also…Crohn’s Disease
Edit, December 18, 2025: Although all signs point to mild Crohn’s Disease, there hasn’t been enough data for a formal diagnosis, which I had not realized until recently. My actual diagnosis at this point is “Ileitis” or inflammation of the terminal ileum. IBD is found among 70-80% of PSC patients, but usually it is Ulcerative
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Setting Calorie Goals
With the dietary changes fairly well-managed, I wanted more data about my body composition and the calories I require to maintain my weight. I’m still struggling with sodium and working on getting my water intake higher, but these things will come with time. And usually I don’t exceed my sodium limits, it’s just that I
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Food Adjustments
There’s no clinically-proven way to slow PSC progression. But I believe diet could make positive outcomes more likely. So in early August I began making changes to the way I eat. Initial approach It didn’t take much to conclude that alcohol was off the table but aside from that advice, my hepatology group only told