Mayo
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Ready for Adventure!
We’re making final preparations to pick up the new RV on February 13th. It’s exciting to finally reach this stage after what feels like a very long time sitting still and waiting while all the medical appointments run their course. …more details below! Medical Update Liver Crohn’s Disease So we’re very close to the finish
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Also…Crohn’s Disease
Edit, December 18, 2025: Although all signs point to mild Crohn’s Disease, there hasn’t been enough data for a formal diagnosis, which I had not realized until recently. My actual diagnosis at this point is “Ileitis” or inflammation of the terminal ileum. IBD is found among 70-80% of PSC patients, but usually it is Ulcerative
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Food Adjustments
There’s no clinically-proven way to slow PSC progression. But I believe diet could make positive outcomes more likely. So in early August I began making changes to the way I eat. Initial approach It didn’t take much to conclude that alcohol was off the table but aside from that advice, my hepatology group only told
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Big Changes
We’ve been dealing with surprising, unwelcome medical news which has taken us off the road for a bit. Prior to the diagnosis we had been toying with the idea of changing our travel setup…but the new situation has accelerated those plans. And although I’m still reeling from the diagnosis, I’m very much looking forward to